Archive for the ‘skeptical community’ Category
Posted by mattusmaximus on April 8, 2014
Last year I blogged about how this blog has joined a coalition of skeptical blogs titled the Skeptics for the Protection of Cancer Patients (SPCP).
The impetus for this is a particularly loathsome man - Stanislaw Burzynski – who is a quack that promises to cure people of their cancer, despite the fact that decades of research show that his claimed cancer cures don’t work. Unfortunately, Burzynski has been able to skirt common decency, good medical science, and the FDA regulators and continue to practice his quackery, resulting in an unfortunate number of people going to him in the hopes that he can cure them. A good rundown of Burzynski’s history of fraud can be found by listening to this recent podcast of Skeptic’s Guide to the Universe.
As I mentioned in my previous post, the SPCP has decided to take down Burzynski due to the particularly flagrant manner in which he practices his dangerous pseudoscience; it will also serve as a message to all other medical quacks and charlatans to be on notice because we in the skeptical community are watching.
Well, now things are going to the next level – straight to Congress. Burzynski has been able to get away with so much for so long because he has political allies in high places, so we’ve decided to fight fire with fire. My skeptical colleagues at the SPCP have put together a petition asking Congress to step in and force the FDA to do its job and properly investigate, regulate, and (hopefully) put out of business Burzynski and his quack clinic.
Please consider signing and passing along this petition; the text of the petition follows – click here to sign:
Petition by Skeptics for the Protection of Cancer Patients
We are writing to request your urgent attention to a matter that involves the exploitation of cancer patients, their families, and their communities.
For nearly 40 years, Houston cancer doctor Stanislaw Burzynski has been treating cancer patients with an unproven chemotherapy he calls “antineoplastons.” Following an agreement in the 1990s with the FDA, he has recently only been able to administer the drug under the auspices of clinical trials. For this questionable treatment, he charges patients exorbitant fees (often hundreds of thousands of dollars) to participate in a trial, and he claims to cure the most difficult, almost uniformly fatal pediatric brain cancers. His claims are not supported by science and evidence; despite opening more than 60 trials in the last 15 years, he has not published the results of a single completed clinical trial.
On Friday, November 15, 2013, many concerning issues about Dr. Burzynski were detailed in a front-page exposé in USA Today, including his past use of antineoplastons as an AIDS and Parkinson’s treatment. Sickeningly, critics of the Clinic have found a pattern going back 20 years of patients publicly celebrating unambiguous signs of disease progression as signs that antineoplastons were working.
The FDA recently released site inspection notes about Stanislaw Burzynski’s clinic. Their findings were horrific:
– Burzynski “failed to protect the rights, safety, and welfare of subjects under your care.”
– “Forty-eight (48) subjects experienced 102 investigational overdoses“
– Burzysnki allowed overdoses continue: “Overdose incidents have been reported to you [....] There is no documentation to show that you have implemented corrective actions during this time period to ensure the safety and welfare of subjects.”
– All baseline tumor measurements were destroyed: “Your [...] tumor measurements initially recorded on worksheets at baseline and on-study treatment [...] studies for all study subjects were destroyed and are not available for FDA inspectional review.” Without any measurement there is no way to determine any actual efficacy of the treatment, making Burzynski’s claims unsupported and unpublishable.
– Burzynski’s reported success rates are inflated: He “failed to comply with protocol requirements related to the primary outcome, therapeutic response [...] for 67% of study subjects reviewed during the inspection.” Nonetheless, these inaccurate outcomes are used to convince dying patients antineoplastons can save them.
Other issues cited by the FDA included:
– Paying patients who failed to meet the inclusion criteria for the study were admitted to Burynski’s trials;
– Burzynski did not report all adverse events as required by his study protocols, and many exhibiting toxic effects were not removed from treatment;
– Adverse events were not reported in a timely fashion (in one case 7 years);
– The FDA received two different versions of a pediatric patient’s records during an inspection, especially significant because the child apparently died of a known side effect of antineoplastons.
Shockingly, these observations were made after a decade of abysmal site reviews by the FDA. Currently, Burzynski’s trials are subject to a partial clinical hold, which means Burzynski is still treating patients already on his protocol.
We are asking that you:
– Encourage the FDA to dissolve the Burzynski Research Institute’s clearly deficient Institutional Review [ethical oversight] Board and toplace a permanent hold on any more cancer patients receiving antineoplastons;
– Investigate how Burzynski has been allowed to conduct experiments on pediatric cancer patients while repeatedly cited for violating rules designed to prevent uncontrolled human experimentation.
– Investigate why the FDA allowed this abysmal researcher to advance to phase 3 clinical trials without publishing a single phase 2 trial;
– Protect cancer patients from abuse through legislation and FDA oversight reform.
Please help end a medical ethics scandal that involves eight times as many patients as the Tuskegee Experiment. I look forward to your response on this important matter.
Posted in medical woo, politics, skeptical community | Tagged: antineoplastons, Burzynski, cancer, Change.org, chemotherapy, clinic, congress, cure, doctor, FDA, fraud, health, Houston, medicine, Orac, patients, petition, politics, pseudoscience, quack, Rep. Issa, Respectful Insolence, science, science-based, science-based medicine, Skeptics for the Protection of Cancer Patients, SPCP, Stanislaw Burzynski, Texas, The OTHER Burzynski Patient Group, thehoustoncancerquack.com, treatment | 1 Comment »
Posted by mattusmaximus on March 29, 2014
In my most recent post, I mentioned the biggest and most famous of skeptical conferences, The Amaz!ng Meeting 2014; however, we in the skeptical community should also be aware there is much being done at the local and regional level that deserves our support. And sometimes this is happening in places you’d not normally expect… like in Arkansas.
There is a free skeptical/atheist conference called LogiCon taking place at the University of Arkansas in Fayetteville, AR over the weekend of April 19-20th, and they need our help. Their funding fell through and they need only $3000 to keep this conference running. And if you are wondering what will take place at this event, just take a look at their page and you’ll see why I’m advertising this request for donations on my blog.
Whether it’s hosting Dorian Sagan (yes, that’s Carl Sagan’s son) or premiering a new documentary about atheism called “A Scarlet Letter”, I think you can agree with me that this is a worthwhile endeavor… all the more so since it is taking place right in the middle of the Bible Belt, where critical thinking can often go by the wayside.
If you can help with a cash donation, please contribute here. Otherwise, please spread the word – thanks! :)
Posted in skeptical community | Tagged: A Scarlet Letter, Arkansas, atheism, Bible Belt, con, conference, critical thinking, donations, Dorian Sagan, funding, Logicon, meeting, skepticism, University of Arkansas | Leave a Comment »
Posted by mattusmaximus on March 28, 2014
I just wanted to pass along the news that registration has opened for The Amaz!ng Meeting 2014 in Las Vegas this July. This year’s theme is “Skepticism and The Brain”, and it promises to be an educational and enlightening experience. Read on for more…
We are thrilled to announce that The Amaz!ng Meeting (TAM) returns in just a few months: July 10-13, 2014 at the South Point Hotel & Casino in Las Vegas, NV.
Our theme this year – Skepticism and the Brain – is focused on the cognitive and brain sciences and how they inform the project of skepticism. Keynote speakers include the acclaimed philosopher, cognitive scientist, and best selling author Daniel Dennett and Scientific AmericanEditor-in-Chief Mariette DiChristina. Other speakers include neurophilosopher Patricia Churchland, Australia’s Dr. Karl, Evolution & Human Behavior Editor-in-Chief Robert Kurzban, Brainwashed: The Seductive Appeal of Mindless Neuroscience authors Scott Lilienfeld and Sally Satel, M.D., influential memory researcher Elizabeth Loftus, clinical neurologist Steven Novella, M.D., immunologist Paul Offit, M.D., National Center for Science Education’s Eugenie Scott, Skeptic Editor-in-Chief Michael Shermer, psychologists and best selling authors Carol Tavris and Richard Wiseman, and many, many more!
The inimitable George Hrab returns as our Master of Ceremonies. As Pacific Standard magazine recently described, Hrab’s “vaudeville-style” has set the tone for “what is perhaps the world’s preeminent gathering of self-proclaimed skeptics.”
This annual celebration of critical thinking is an unparalleled opportunity to make like-minded friends, enjoy some of the brightest minds on issues important to skeptics, and leave with tools for spreading a helpful and educational message to those who might be hurt by charlatans and unfounded belief. TAM has become the must-go-to event for skeptics and science advocates.
Join James Randi and over a thousand other like-minded folks for four days of fun, friendship, and critical thinking!
Posted in skeptical community | Tagged: 2014, brain, conference, convention, education, educator, James Randi Educational Foundation, JREF, Las Vegas, meeting, money, neuroscience, science, skeptic, skepticism, Skepticism and The Brain, TAM, TAM2014, teachers, teaching, The Amaz!ng Meeting, The Amazing Meeting | Leave a Comment »
Posted by mattusmaximus on March 27, 2014
One of the most memorable science and skeptical experiences I had was to organize a Darwin Day event a few years back wherein my local group – Darwin’s Bulldogs – hosted Charles Darwin impersonator and historian Brian “Fox” Ellis. Brian is an amazing performer, and we packed the room with people who were mesmerized by his work.
Now I’d like to help Brian out with his campaign to create an e-book (that incorporates both audio and video) through a campaign called “History… In Person!” that features Charles Darwin and many other figures of historical and scientific note. Read on for more information, and please consider donating to his cause…
Darwin impersonator and excellence in science educational policy advocate, Brian “Fox” Ellis is working with a great team of educators, artists and techies to help produce a series of living books, HISTORY… In Person! They are using crowd sourced funding, which means that if you want to support this project you purchase books before-hand to help them move forward. You can be part of this team and produce a living book that you can Print on Demand, read on your tablet, listen to as a podcast and download as video, giving you an intimate encounter with historical characters as portrayed by Brian “Fox” Ellis. You get to help decide which characters get produced. Join this crowd sourced funding campaign and win cool perks including a chance to be a costumed character in the film! http://www.Indiegogo.com/projects/history-in-person Share this link on social media and invite your friends to vote! If we get enough folks to support Darwin, he has agreed to offer a free program in the Chicago area for Darwin’s Bulldogs and donate Biography Cards to the Clergy Project! Follow the link and choose your perk for supporting HISTORY… In Person!
Posted in skeptical community | Tagged: actor, audio, Brian Ellis, Brian Fox Ellis, campaign, Charles Darwin, Darwin Day, Darwin's Bulldogs, donation, e-book, ebook, education, evolution, history, History In Person, impersonator, recreation, science, video | Leave a Comment »
Posted by mattusmaximus on March 17, 2014
As many of you know, there has been an effort to make a movie documentary of the life of one of the greatest skeptical icons, James “The Amazing One” Randi, in recent years. The film is now made, and it will soon be making the rounds on the indie film network. Despite that fact, those who made and now promote the film still need your help; read on to see how…
We are thrilled and proud to announce that AHL was accepted to premiere at the prestigious 2014 Tribeca Film Festival in New York City!
It is thanks to YOU our great supporters that we were able to make this film and we are so thankful for everything you’ve done for us!
The schedule has not yet been announced, but when it is we will pass it along. The Festival runs from April 16 – 27, and AHL will screen several times in that period. AHL is showing in theViewpoints section of the fest.
It will be possible for the general public to buy tickets, but it’s likely the numbers will be limited. Have no fear! We will have additional festival and screening announcements coming soon, and there’s a good chance we’ll be showing the film near you. Keep an eye on our website and sign up for updates if you haven’t for the latest news. …
… We are slaving away – working day and night – to finish the film! We barely eat or drink. We are doing our best to make ourKickstarter backers proud by making the best film you’ve ever seen! We have little to look forward to in these agonizing days of constant headaches, technical issues, archival footage houses sending us the wrong clips. We know it’ll be worth it, but we need a boost. Something to pick us up, to help drive us over the finish line.
Well, YOU can help us – help make all our hard work pay off, help us sleep better at night, and have sweet happy dreams. And it won’t cost you a penny.
MAKE US INDIEWIRE PROJECT OF THE YEAR!!!
Tell all your friends, pass the word around - VOTE FOR AN HONEST LIAR!
For Randi – for the film – for us poor filmmakers – WE CAN DO IT!!!
Posted in skeptical community | Tagged: An Honest Liar, biography, campaign, contribute, debunking, documentary, donation, festival, film, fraud, fundraising, independent, indie, Indiewire, investigation, James Randi, James Randi Educational Foundation, JREF, Kickstarter, lies, life, magic, magicians, money, movie, New York City, NYC, paranormal, Randi, science, skepticism, story, The Amazing One, The Amazing Randi Story, Tribeca Film Festival, trickery | 1 Comment »
Posted by mattusmaximus on March 2, 2014
One of my skeptical colleagues, Surly Amy, is once again launching a worthwhile effort to spread the message of skepticism: she is using her art to raise money to help buy passes to help people go to science and secular events. This will be her 5th year doing this fundraiser project to help people attend the science track at Convergence in Bloomington, Minnesota (a.k.a. SkepchickCON.) This year’s track is jam packed full of educational science programming, led by scientists with activities for children and adults!
Also, if you are someone in need of help paying for their ticket and want to learn more about the sciences by attending this event, then simply “add your name to the hat” in the comment section on the blog post.
Posted in skeptical community | Tagged: art, artwork, children, con, Convergence, donate, donation, education, fundraiser, fundraising, I Love Science, Minnesota, science, science track, Skepchick, SkepchickCon, Surly Amy, track | 2 Comments »
Posted by mattusmaximus on March 1, 2014
Over the years I’ve made a huge number of blog posts here (well over 730 by now), and I’ve also participated in a number of public lectures and/or discussions. Many of these events were recorded on video, and I’m happy to share with you a collection of those public events through my Lanyard page…
Posted in skeptical community | Tagged: Chicago, con, Convergence, discussion, Dragon*Con, Lanyard, lecture, presentation, Skepchicamp, SkepchickCon, SkeptiCamp, skepticism, video | Leave a Comment »
Posted by mattusmaximus on January 17, 2014
One year ago, I wrote a post about a kickstarter project to help fund a film on the life of that skeptical giant, James Randi. The film is titled “An Honest Liar: The Amazing Randi”, and I’m happy to report that it is nearing completion! But in order to bring it across the finish line, the film’s producers need a little more financial help. Read on for details, and please consider donating if you are able…
The finish line is approaching and we wanted to let you, our supporters, know about our progress. We’ve now completed a fine-cut of the documentary and will be locking it in shortly.
We have now scheduled our post-production (conform, color correct, audio mix, final output etc.) for mid-March and are officially going to complete the film by the end of March, with the aim to premiere An Honest Liar at film festivals beginning in April.
Between now and then, we’ll be refining the edit, working with our composer on the score, sourcing the archival footage we use (there’s a TON…) transferring it and re-inserting it into the cut, completing graphics, animations, and titles, and when it’s all done, popping open a bottle of champagne.
(BTW – if you have any videotapes of old Randi shows, let us know!)
EXCEPT for people getting the digital download/DVD/Blu-ray and movie posters, everyone should have gotten their Kickstarter rewards. We have gotten a number of returned packages for people who may have moved, so if you haven’t gotten your reward please message us.
We still need additional support. The licensing of some of the archival footage is incredibly expensive, but it’s rare and great material that we can’t pass up. If you missed out on donating or know someone who wanted to, we can still use help. Plus, you can still get many of the Kickstarter rewards we offered – while they still last. Just go to our website to donate and choose rewards.
Finally, below is a bonus clip that isn’t going to be in the final film, but we just couldn’t leave on the edit room floor.
Thanks again to all our supporters!
- The Honest Liar team
Posted in skeptical community | Tagged: An Honest Liar, biography, campaign, contribute, debunking, documentary, donation, film, fraud, fundraising, investigation, James Randi, James Randi Educational Foundation, JREF, Kickstarter, lies, life, magic, magicians, money, movie, paranormal, Randi, science, skepticism, story, The Amazing One, The Amazing Randi Story, trickery | 1 Comment »
Posted by mattusmaximus on January 6, 2014
The fine folks at Chicago Skeptics are currently in the early stages of organizing the Chicago Skepticamp 2014 conference, which is scheduled for Saturday April 5th at the Irish American Heritage Center, and one of the things they need most right now are speakers. Please read their latest press release for more information on this, and consider getting involved or at least passing along the news:
Saturday, April 5th
Irish American Heritage Center
Registration will be open through March 1.
This year’s schedule:
10:00 am: Hello!
Here is the part of the schedule where there will be a whole bunch of awesome speakers, just like you!
So much like you, in fact, that one of them could BE you.
Speaker registration is now open! Get those brains a-stormin’. You don’t have to have your whole talk ready, but tell us what you’d like to speak about and we’ll get you signed up.
Speaker sign-up ends on February 1st.
(All final speaker materials must be submitted by March 1)
What is a Skepticamp?
Skepticamp is an opportunity for us to get together to learn about different ares of skepticism from our fellow group members. These talks give an opportunity for individuals to delve into particular areas of skepticism…both the tried and true topics and those that may not get as much attention in the regular blogs and articles. Skepticamps encourage as many people as possible to give a talk…and certainly encourages first-time speakers to try their hand at presenting in a friendly, supportive atmosphere.
For more info on skepticamps in general, visit:
One of the principles of Skepticamp is that everyone participates either by talking or helping in some way. We are already having planning committee meetings, and interested parties can still help. Other ways to help will be announced as we get closer to the date…setup and cleanup crews, distributing publicity, etc. (Nobody is going to be turned away because they don’t have a specific job, though.)
Skepticamp is a participant supported event. If you’d like to help offset some of the financial costs incurred by the organizers, please consider making a donation. We’ll also be accepting donations at the event.
Though Skepticamp is free to attend, there are several significant expenses for making it a reality. If you’d like to help, please click this link.
Posted in skeptical community | Tagged: camp, Chicago, conference, meeting, presentation, science, skeptical community, SkeptiCamp, skepticism, speakers | 1 Comment »