The Skeptical Teacher

Musings of a science teacher & skeptic in an age of woo.

Posts Tagged ‘congress’

Fight Against Cancer Quack Burzynski Goes to Congress

Posted by mattusmaximus on April 8, 2014

Last year I blogged about how this blog has joined a coalition of skeptical blogs titled the Skeptics for the Protection of Cancer Patients (SPCP).

The impetus for this is a particularly loathsome man - Stanislaw Burzynski – who is a quack that promises to cure people of their cancer, despite the fact that decades of research show that his claimed cancer cures don’t work.  Unfortunately, Burzynski has been able to skirt common decency, good medical science, and the FDA regulators and continue to practice his quackery, resulting in an unfortunate number of people going to him in the hopes that he can cure them.  A good rundown of Burzynski’s history of fraud can be found by listening to this recent podcast of Skeptic’s Guide to the Universe.

As I mentioned in my previous post, the SPCP has decided to take down Burzynski due to the particularly flagrant manner in which he practices his dangerous pseudoscience; it will also serve as a message to all other medical quacks and charlatans to be on notice because we in the skeptical community are watching.

Burzynski SI Title

Well, now things are going to the next level – straight to Congress.  Burzynski has been able to get away with so much for so long because he has political allies in high places, so we’ve decided to fight fire with fire.  My skeptical colleagues at the SPCP have put together a petition asking Congress to step in and force the FDA to do its job and properly investigate, regulate, and (hopefully) put out of business Burzynski and his quack clinic.

Please consider signing and passing along this petition; the text of the petition follows – click here to sign:

Protect Desperate Patients from the Houston Cancer Quack

Petition by Skeptics for the Protection of Cancer Patients

We are writing to request your urgent attention to a matter that involves the exploitation of cancer patients, their families, and their communities.

For nearly 40 years, Houston cancer doctor Stanislaw Burzynski has been treating cancer patients with an unproven chemotherapy he calls “antineoplastons.” Following an agreement in the 1990s with the FDA, he has recently only been able to administer the drug under the auspices of clinical trials. For this questionable treatment, he charges patients exorbitant fees (often hundreds of thousands of dollars) to participate in a trial, and he claims to cure the most difficult, almost uniformly fatal pediatric brain cancers. His claims are not supported by science and evidence; despite opening more than 60 trials in the last 15 years, he has not published the results of a single completed clinical trial.

On Friday, November 15, 2013, many concerning issues about Dr. Burzynski were detailed in a front-page exposé in USA Today, including his past use of antineoplastons as an AIDS and Parkinson’s treatment. Sickeningly, critics of the Clinic have found a pattern going back 20 years of patients publicly celebrating unambiguous signs of disease progression as signs that antineoplastons were working.

The FDA recently released site inspection notes about Stanislaw Burzynski’s clinic. Their findings were horrific:

– Burzynski “failed to protect the rights, safety, and welfare of subjects under your care.”
– “Forty-eight (48) subjects experienced 102 investigational overdoses“
– Burzysnki allowed overdoses continue: “Overdose incidents have been reported to you [....] There is no documentation to show that you have implemented corrective actions during this time period to ensure the safety and welfare of subjects.”
– All baseline tumor measurements were destroyed: “Your [...] tumor measurements initially recorded on worksheets at baseline and on-study treatment [...] studies for all study subjects were destroyed and are not available for FDA inspectional review.” Without any measurement there is no way to determine any actual efficacy of the treatment, making Burzynski’s claims unsupported and unpublishable.
– Burzynski’s reported success rates are inflated: He “failed to comply with protocol requirements related to the primary outcome, therapeutic response [...] for 67% of study subjects reviewed during the inspection.” Nonetheless, these inaccurate outcomes are used to convince dying patients antineoplastons can save them.

Other issues cited by the FDA included:

– Paying patients who failed to meet the inclusion criteria for the study were admitted to Burynski’s trials;
– Burzynski did not report all adverse events as required by his study protocols, and many exhibiting toxic effects were not removed from treatment;
– Adverse events were not reported in a timely fashion (in one case 7 years);
– The FDA received two different versions of a pediatric patient’s records during an inspection, especially significant because the child apparently died of a known side effect of antineoplastons.

Shockingly, these observations were made after a decade of abysmal site reviews by the FDA. Currently, Burzynski’s trials are subject to a partial clinical hold, which means Burzynski is still treating patients already on his protocol.

We are asking that you:

– Encourage the FDA to dissolve the Burzynski Research Institute’s clearly deficient Institutional Review [ethical oversight] Board and toplace a permanent hold on any more cancer patients receiving antineoplastons;
– Investigate how Burzynski has been allowed to conduct experiments on pediatric cancer patients while repeatedly cited for violating rules designed to prevent uncontrolled human experimentation.
– Investigate why the FDA allowed this abysmal researcher to advance to phase 3 clinical trials without publishing a single phase 2 trial;
– Protect cancer patients from abuse through legislation and FDA oversight reform.

Please help end a medical ethics scandal that involves eight times as many patients as the Tuskegee Experiment. I look forward to your response on this important matter.

Click here to Sign the Petition!

Posted in medical woo, politics, skeptical community | Tagged: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 2 Comments »

Speak Up for Science: Stop Sequestration!

Posted by mattusmaximus on February 21, 2013

If you’ve been paying attention to the U.S. political news of late, then you know that a crucial fiscal deadline is approaching: the dreaded sequestration cuts across the board to all federal programs.  As a supporter of strong science education and scientific research programs, this alarms me quite a bit.  To make such deep and long-lasting cuts in our most basic science research and education programs would be like eating our seed corn, with the result that scientific and technological innovation and education would be starved of critical funding at a time when we need it the most.

So I encourage you to read, sign, and pass along the following petition from the American Association for the Advancement of Science (AAAS) imploring Congress to seek a bipartisan solution to this problem:

Petition

On behalf of the American Association for the Advancement of Science (AAAS), we—as researchers, professionals, students and interested citizens in the science, technology, engineering and math fields—write to ask both branches of government to work together to achieve a bipartisan compromise that moves the country on to sound fiscal footing without sacrificing our nation’s crucial investments in science and technology. Almost every national priority—from health and defense, agriculture and conservation, to hazards and natural disasters—relies on science and engineering. As another fiscal cliff approaches, placing a significant burden on federal research and development investments, as sequestration would do, is nothing less than a threat to national competitiveness. Support for science is support for economic growth, innovation, and technological progress. Please consider this as you seek to address our nation’s pressing fiscal challenges.

Click here to sign the petition!

Posted in education, politics, science funding, skeptical community | Tagged: , , , , , , , , , , , , , , , , , , , , , , | 2 Comments »

Tell Congress to Support the Darwin Day Resolution!

Posted by mattusmaximus on February 5, 2013

I am pleased to pass on the news that there is a resolution pending before the U.S. Congress to adopt a resolution in favor of Darwin Day!  There is more information available on how to get in touch with your Representative and Senator from the Freedom From Religion Foundation below…

Ask Congress to adopt Darwin Day

February 5, 2013

Continuing the tradition of former Rep. Pete Stark (D-CA), Rep. Rush Holt (D-NJ) has introduced a resolution designating Charles Darwin’s 204th birthday, Feb. 12, 2013, as Darwin Day. The resolution “recogniz[es] the importance of science in the betterment of humanity.”

Holt was recently quoted in The New York Times as saying, “I hope we can hold hearings, where people can hear about Darwin and science and the jobs it creates, the lives it saves, everything.”

Holt’s resolution touts “the validity of Darwin’s theory of evolution,” “the monumental amount of scientific evidence” that supports the theory, and notes that evolution’s “validity … is further strongly supported by the modern understanding of the science of genetics.”

The resolution chastises science-deniers: “the advancement of science must be protected from those unconcerned with the adverse impacts of global warming and climate change” and “the teaching of creationism in some public schools compromises the scientific and academic integrity of the United States education systems.”

Our country faces a crisis of ignorance. To the shame of the United States’ international standing, about half of Americans reject evolution. Globally the United States ranks just above Turkey in public acceptance of evolution. How can we compete in a global, technologically advanced community when a majority of U.S. citizens deny basic reality and embrace creationism?

The voices of science and secularism must be heard. Ask the U.S. House to hold Darwin Day hearings.

Take Action Today!

Contact your U.S. Representative to support the resolution and ask for hearings.  To find out who your representative is, type in your zip code on this website http://www.house.gov/representatives/find/ to find your representative. Click on their name to contact them.

If you already know who your representative is, find their contact information on this alphabetical list http://www.house.gov/representatives/

Call, email, fax, write, or Facebook them. Do whatever it takes to be heard!

Contact the chair of the House Committee on Science, Space and Technology, where the bill was referred, to ask for a hearing.

House Committee on Science, Space, and Technology Chairman Lamar Smith (R-TX) http://science.house.gov/contact-us/email-us 2321 Rayburn House Office Building Washington, DC 20515 Phone: 202-225-6371 Fax: 202-226-0113

Thank Darwin Day Sponsors

Take a moment to thank Rep. Holt. Rep. Holt, a nuclear physicist by training, self-identifies as a Quaker and deserves our gratitude for his efforts. Do feel free to identify yourself as a nonbeliever, atheist, etc., so he knows the secular bloc has clout (and good manners)!

Letters: 1214 Longworth HOB Washington DC 20515 Phone: (202) 225-5801 Fax: (202) 225-6025 Webform: https://forms.house.gov/holt/webforms/issue_subscribe.htm (Representative Holt will only accept email from residents of New Jersey.)

While you’re at it, thank Holt’s cosponsors (especially if they represent you). They are:

Rep. Michael Honda (CA-17) Rep. Edward Markey (MA-5) Rep. Eleanor Holmes Norton (DC) Rep. Jared Polis (CO-2) Rep. Louise Slaughter (NY-25) (If your representative’s name isn’t on this list, ask why not!)

Contact your Senator

Ask your Senator to introduce a Darwin Day resolution, while you’re at it!

Find and contact your U.S. Senators: http://www.senate.gov/general/contact_information/senators_cfm.cfm

Write a letter to the editor

Supporting Darwin Day would make an excellent and timely topic of a letter to the editor to your local or favorite publication. Don’t forget social media and online news comment sections to help spread the word.

Thank you for your activism. Freedom depends on freethinkers, and Darwin Day deserves your support!

Posted in politics, skeptical community | Tagged: , , , , , , , , , , , , , , , , , , , , , , , , , , | 1 Comment »

Non-Religious on the Rise… In Congress!

Posted by mattusmaximus on January 7, 2013

If you’ve followed the blog for any amount of time, then you know that I’ve touched on the topic of a rising secular and non-religious demographic in the United States; in fact, now 1-in-5 Americans label themselves as non-religious.  I also wrote about Kyrsten Sinema, a newly elected Congresswoman who has openly identified herself as atheist.  Well, it seems that there is now a convergence between these two things emerging, because this new Congress now contains the highest number of openly non-religious members in history!

US-Congress

It’s not just for religious fundamentalists anymore :)

This Politico story has more details:

Non-believers on rise in Congress

By CHARLES MAHTESIAN | 1/5/13 2:34 PM EST

The number of members of Congress who don’t identify with any particular religion is on the rise, according to an analysis by the Pew Forum on Religion & Public Life.

In the 96th Congress (1979-80), not a single member of the House or Senate said they didn’t belong to any particular faith, didn’t know or refused to disclose their religion. But in the new 113th Congress, 10 members fall under that category.

That’s twice as many as in the 111th Congress (2009-10).

Pew notes there’s still a great disparity between the percentage of U.S. adults and the percentage of members of Congress who don’t identify with any particular religion. …

… The numbers here caught my eye, not because of the disparity between non-believers in the general population and in Congress, but because I was surprised so many members actually admitted to it. … [emphasis added]

Exactly.  I, and many others, have long suspected that there are a good number of closeted “nones” in our Congress, but up until now they’ve been cautious about self-identifying as non-religious for fear of electoral backlash.  However, it seems that, slowly but surely, those days are drawing to a close :)

Posted in politics, religion | Tagged: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a Comment »

Kyrsten Sinema: First Open Non-Theist Elected to Congress

Posted by mattusmaximus on November 8, 2012

Wow… this was one hell of an election!  I just want to point out a couple of notable races.  In this post, I want to focus on Kyrsten Sinema, a Democrat in Arizona’s 9th Congressional District who looks to be the first openly non-theistic (atheistic?) person elected to Congress!  I say “looks to be” because 1) the race hasn’t officially been concluded (votes are still being counted, but Sinema has a lead which only seems to be growing), and 2) Pete Stark, Congressman from California, is openly non-theistic, but he didn’t originally run as an out-of-the-closet non-theist.  Here’s more on Kyrsten Sinema:

Kyrsten Sinema: ‘We’re Optimistic’ in Arizona

… Election for Sinema would be no small feat in the state that produced U.S. senator and 2008 presidential candidate John McCain and Gov. Jan Brewer, whose exceptionally conservative immigration policies have regularly made national news. In many ways, Sinema, who is also an open nontheist and was raised Mormon and attended Brigham Young University, is an anomaly in Arizona politics. But she’s ahead in some polls in the final stages of her race against Parker, though it’s one of Congress’s tightest races. …

As I’ve stated before, this is the wave of the future, folks.  With the rise of a more openly secular demographic in the United States, coupled with the inevitable decline (read: dying off) of the most religious demographic, the good ol’ U.S. of A. will move towards more diversity in both popular culture and political representation.  And that includes non-theists :)

Posted in politics, religion | Tagged: , , , , , , , , , , , , , , , , , , , , , , , , , , | 3 Comments »

Congressional Answers to Science Debate 2012 Questions

Posted by mattusmaximus on October 16, 2012

As many of you know, I have been touting the Science Debate effort for many months now, because issues of science, technology, and science education are too important to be sidelined in our political discourse (especially in an election year!)  This year, the fine folks at Science Debate have not only been holding the presidential candidates’ feet to the fire, but they have also been putting Congressional candidates on the spot.  And now some Congressional candidates have answered the challenge :)

Congressional Answers to the Top American Science Questions

ScienceDebate.org and Scientific American asked 33 leaders of science-oriented congressional committees to respond.

FOR IMMEDIATE RELEASE

Washington — October 16, 2012. Americans have all heard about the scandalously anti-science comments made by certain members of the House committee on Science, Space and Technology. ScienceDebate.org and our media partner, Scientific American, the nation’s oldest continuously published magazine, wanted to see what other members of congress in key leadership positions relative to the nation’s science policy had to say about science.

We prepared a subset of eight of the fourteen Top American Science Questions which President Obama and Governor Romney have answered, ranging from climate change to science in public policy, and asked thirty-three members of congress in leadership positions on the nation’s science-oriented congressional committees to respond.

Six of them declined outright, including Senate minority leader Mitch McConnell and House Speaker John Boehner, who were asked to participate because of their overall responsibility for the flow of legislation through congress. Several more ignored numerous requests from ScienceDebate and Scientific American. Nine of the thirty-three responded.

“Americans should be concerned that only nine of the thirty-three key leaders on science-related congressional committees feel the need to let the public know their views on science,” said Shawn Otto, CEO of ScienceDebate.org. “As to the nine who did respond—members of both parties—their leadership should be applauded.”

Senators who responded

Dianne Feinstein, D-CA, Chair, Subcommittee on Energy and Water Development

Tom Harkin, D-IA, Chair, Committee on Health, Education, Labor and Pensions

Jay Rockefeller, D-W, Chair, Committee on Commerce, Science and Transportation

Representatives who responded

Timothy Bishop, D-NY-1, Ranking Member, Subcommittee on Water Resources and Environment

Ralph Hall, R-TX-4, Chair, Committee on Science, Space and Technology

John Mica, R-FL-7, Chair, Committee on Transportation and Infrastructure

Nancy Pelosi, D-CA-8, House Minority Leader

Chris Van Hollen, D-MD-8, Ranking Member, House Budget Committee

Henry Waxman, D-CA-30, Ranking Member, Energy and Commerce Committee

Their responses, including those who declined or failed to respond, can be found at http://www.sciencedebate.org/congress12/ and at Scientific American.

Posted in politics, science funding, skeptical community | Tagged: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a Comment »

Georgia Rep. Paul Broun, Member of House Science Committee, Says “Evolution, Embryology, Big Bang Theory are ‘Lies Straight from the Pit of Hell’ “

Posted by mattusmaximus on October 8, 2012

But don’t take it from me, take it straight from his mouth…

First, allow me to state the obvious:

Now that I’ve gotten that out of my system… we see two things from this idiotic tirade from Rep. Broun:

1. He engages in the typical creationist fear-mongering about evolutionary science that it is inherently evil, etc (hence the “Pit of Hell” reference).  I suppose we needn’t bother Rep. Broun with the annoying fact that many of his Christian brethren think evolution is just fine.

2. He, like far too many of his conservative colleagues in our government (I’m talking about YOU, Rep. Todd Akin), seem to have gone out of their way lately to declare war on any form of science they deem contrary to their ideology.  This includes not only denying evolution and denying climate science, and apparently basic info on human reproduction, but also rejecting certain pesky historical facts along the way.

Folks, I don’t know about you, but I don’t want people like this running my federal government.  This is why I so strongly support efforts like Science Debate, and why I think you should, too.  It is also why those of us who are defenders and advocates of science and skepticism should be involved in our political process.

Posted in creationism, politics, religion | Tagged: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 2 Comments »

Update from Science Debate 2012

Posted by mattusmaximus on September 30, 2012

I recently recieved the following encouraging update from Science Debate 2012.  Please take a few minutes to read it and consider donating some money towards this worthy attempt to push issues of science, technology, and science education more into the forefront of the political discussion!

The coverage of the the ScienceDebate responses continues to expand, and we are moving the conversation into other races.

In addition to coverage in hundreds of media outlets, specific organizations like Scientific American and The National Academies Press have used the questions as a basis for a series of further explorations.  This is helping to slowly steer the juggernaut of US political news coverage toward focusing more on key science issues, and encouraging candidates to engage.

Additionally, project media partner Scientific American has assembled a team of science policy and editorial advisers to grade the Obama and Romney answers.  Those grades will be announced on October 16.

We are also expanding the effort in other ways.  ScienceDebate and Scientific American invited about three dozen members of congress who lead key science-related committees to respond to a congressional subset of the questions, and will be publishing their responses on October 16.

ScienceDebate has also been working with the Northwest Science Writers Association to refine a subset of six of the questions that are most appropriate to a Washington State gubernatorial debate, and today invited the candidates to respond.

By continuing to work to expand the conversation, we hope to remind candidates and citizens alike of how critical science and engineering topics are to our success as a nation.

Please give today to support these efforts.  It’s tax deductable, and we can’t go on without your support.  And thanks.

Best,

-Shawn Otto and the team at ScienceDebate.Org

Posted in politics, science funding, skeptical community | Tagged: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a Comment »

U.S. Presidential Candidates Answer Science Debate Questions

Posted by mattusmaximus on September 7, 2012

I am happy to announce that both presidential candidates – President Barack Obama and his rival Mitt Romney – have answered the top questions posed by Science Debate 2012.  You can read more about their responses below:

Candidates’ Answers, a Side by Side Comparison

Innovation | Climate Change | Research and the Future | Pandemics and Biosecurity
Education | Energy | Food | Fresh Water | The Internet | Ocean Health
Science in Public Policy | Space | Critical Natural Resources | Vaccination and Public Health

Posted in politics, science funding, skeptical community, Uncategorized | Tagged: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a Comment »

Members of U.S. Congress Refuse to Address Science Debate Questions

Posted by mattusmaximus on September 2, 2012

As I’ve written more than once this election season, there is a big effort by Science Debate 2012 underway to get the U.S. presidential candidates – Barack Obama and Mitt Romney – to address questions oriented around science, technology, and engineering as part of their campaign.  Thankfully, both campaigns have agreed to address those questions.

By extension, the Science Debate team decided to expand their effort to include key members of the U.S. Congress, including both the House of Representatives and Senate.  Unfortunately, to date, only two members of Congress have responded to these questions!  Shawn Otto from Science Debate has more on this…

I’m a pretty reasonable guy, but this is stunning to me.  Of the many committee leaders in Congress who deal with the nation’s science policy, just two — Reps Henry Waxman and Chris Van Hollen — have responded to the ScienceDebate questions.  And House Speaker John Boehner’s team has outright declined!

Science drives over half of US economic growth and lies at the center of several of our most critical challenges and opportunities.  Many of the leading science organizations in the United States arrived at a consensus on the Top American Science Questions: Congressional Edition, and the effort is supported by nearly two hundred science organizations and universities, and tens of thousands of individuals, ranging from concerned citizens to Nobel laureates and corporate CEOs.

And yet, members of Congress are ignoring the ScienceDebate questionnaire, submitted to them by Scientific American magazine, or declining to answer any questions about their policy views!

Please contact the following Congress Members’ offices right now and ask them to respond to the ScienceDebate and Scientific American questionnaire immediately.  Be respectful, and tell in your own words why this is important.  Ask them to send their responses back to submit@sciam.com.

Thank you!

Senate

Lamar Alexander: Tennessee (R)—ranking member, Subcommittee on Energy and Water Development

Barbara Boxer: California (D)—chair, Committee on Environment and Public Works

Jim DeMint: South Carolina (R)—member, Committee on Commerce, Science and Transportation (Ranking Member Kay Bailey Hutchinson is retiring)

Michael Enzi: Wyoming (R)—ranking member, Committee on Health, Education, Labor and Pensions

Dianne Feinstein: California (D)—chair, Subcommittee on Energy and Water Development

Tom Harkin: Iowa (D)—chair, Committee on Health, Education, Labor and Pensions

James Inhofe: Oklahoma (R)—ranking member, Committee on Environment and Public Works

Mitch McConnell: Kentucky (R)—Senate minority leader

Patty Murray: Washington State (D)—member, Committee on the Budget (Chairman Kent Conrad is retiring)

Lisa Murkowski: Alaska (R)—ranking member, Committee on Energy and Natural Resources

Harry Reid: Nevada (D)—Senate majority leader

Pat Roberts: Kansas (R)—ranking member, Committee on Agriculture, Nutrition and Forestry

Jay Rockefeller: West Virginia (D)—chair, Committee on Commerce, Science and Transportation

Jeff Sessions: Alabama (R)—ranking member, Committee on the Budget

Debbie Stabenow: Michigan (D)—chair, Committee on Agriculture, Nutrition and Forestry

Ron Wyden: Oregon (D)—member, Committee on Energy and Natural Resources (Chairman Jeff Bingaman is retiring)

House of Representatives

Timothy Bishop: New York State–1 (D)—ranking member, Subcommittee on Water Resources and Environment

John Boehner: Ohio–8 (R)—speaker of the House

Scott Garrett: New Jersey–5 (R)—vice chair, Committee on the Budget (Chair Paul Ryan is the Republican vice presidential candidate)

Bob Gibbs: Ohio–18 (R)—chair, Subcommittee on Water Resources and Environment

Ralph Hall: Texas–4 (R)—chair, Committee on Science, Space and Technology

Doc Hastings: Washington State–4 (R)—chair, Committee on Natural Resources

Eddie Bernice Johnson: Texas–30 (D)—ranking member, Committee on Science, Space and Technology

Frank Lucas: Oklahoma–3 (R)—chair, Committee on Agriculture; member of Committee on Science, Space and Technology

Edward J. Markey: Massachusetts–7 (D)—ranking member, Committee on Natural Resources

John Mica: Florida–7 (R)—chair, Committee on Transportation and Infrastructure

Nancy Pelosi: California–8 (D)—House minority leader

Best,

-Shawn Otto and the team at ScienceDebate.Org

Folks, we need to change this situation.  These are our elected officials, placed onto committees which decide issues of great scientific, technological, engineering, and educational importance which affect all of our lives.  Most especially if you are a constituent of theirs, please consider contacting the Congressmembers above and tell them you want them to respond to the Science Debate challenge.

Posted in politics, science funding, skeptical community | Tagged: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 8 Comments »

 
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