The Skeptics Society has retired Skepticblog (while preserving all posts online at their original urls for future reference), but we’re proud to announce our bigger, better new blog: INSIGHT at Skeptic.com! Dedicated to the spirit of curiosity and grounded in scientific skepticism’s useful, investigative tradition of public service, INSIGHT continues and exp […]
Some people say, "Oh, there's anti-science on both sides of the political aisle." But that neglects one important fact: in only ONE political party are the leadership and the party platform dominated by science denial.
Would you believe there is a patch of trapped garbage floating in the North Pacific bigger than the state of Texas? It's called the "Great Pacific Garbage Patch".
The impetus for this is a particularly loathsome man – Stanislaw Burzynski – who is a quack that promises to cure people of their cancer, despite the fact that decades of research show that his claimed cancer cures don’t work. Unfortunately, Burzynski has been able to skirt common decency, good medical science, and the FDA regulators and continue to practice his quackery, resulting in an unfortunate number of people going to him in the hopes that he can cure them. A good rundown of Burzynski’s history of fraud can be found by listening to this recent podcast of Skeptic’s Guide to the Universe.
As I mentioned in my previous post, the SPCP has decided to take down Burzynski due to the particularly flagrant manner in which he practices his dangerous pseudoscience; it will also serve as a message to all other medical quacks and charlatans to be on notice because we in the skeptical community are watching.
Well, now things are going to the next level – straight to Congress. Burzynski has been able to get away with so much for so long because he has political allies in high places, so we’ve decided to fight fire with fire. My skeptical colleagues at the SPCP have put together a petition asking Congress to step in and force the FDA to do its job and properly investigate, regulate, and (hopefully) put out of business Burzynski and his quack clinic.
Please consider signing and passing along this petition; the text of the petition follows – click here to sign:
We are writing to request your urgent attention to a matter that involves the exploitation of cancer patients, their families, and their communities.
For nearly 40 years, Houston cancer doctor Stanislaw Burzynski has been treating cancer patients with an unproven chemotherapy he calls “antineoplastons.” Following an agreement in the 1990s with the FDA, he has recently only been able to administer the drug under the auspices of clinical trials. For this questionable treatment, he charges patients exorbitant fees (often hundreds of thousands of dollars) to participate in a trial, and he claims to cure the most difficult, almost uniformly fatal pediatric brain cancers. His claims are not supported by science and evidence; despite opening more than 60 trials in the last 15 years, he has not published the results of a single completed clinical trial.
The FDA recently released site inspection notes about Stanislaw Burzynski’s clinic. Their findings were horrific:
— Burzynski “failed to protect the rights, safety, and welfare of subjects under your care.”
— “Forty-eight (48) subjects experienced 102 investigational overdoses“
— Burzysnki allowed overdoses continue: “Overdose incidents have been reported to you [….] There is no documentation to show that you have implemented corrective actions during this time period to ensure the safety and welfare of subjects.”
— All baseline tumor measurements were destroyed: “Your […] tumor measurements initially recorded on worksheets at baseline and on-study treatment […] studies for all study subjects were destroyed and are not available for FDA inspectional review.” Without any measurement there is no way to determine any actual efficacy of the treatment, making Burzynski’s claims unsupported and unpublishable.
— Burzynski’s reported success rates are inflated: He “failed to comply with protocol requirements related to the primary outcome, therapeutic response […] for 67% of study subjects reviewed during the inspection.” Nonetheless, these inaccurate outcomes are used to convince dying patients antineoplastons can save them.
Other issues cited by the FDA included:
— Paying patients who failed to meet the inclusion criteria for the study were admitted to Burynski’s trials;
— Burzynski did not report all adverse events as required by his study protocols, and many exhibiting toxic effects were not removed from treatment;
— Adverse events were not reported in a timely fashion (in one case 7 years);
— The FDA received two different versions of a pediatric patient’s records during an inspection, especially significant because the child apparently died of a known side effect of antineoplastons.
Shockingly, these observations were made after a decade of abysmal site reviews by the FDA. Currently, Burzynski’s trials are subject to a partial clinical hold, which means Burzynski is still treating patients already on his protocol.
We are asking that you:
— Encourage the FDA to dissolve the Burzynski Research Institute’s clearly deficient Institutional Review [ethical oversight] Board and toplace a permanent hold on any more cancer patients receiving antineoplastons;
— Investigate how Burzynski has been allowed to conduct experiments on pediatric cancer patients while repeatedly cited for violating rules designed to prevent uncontrolled human experimentation.
— Investigate why the FDA allowed this abysmal researcher to advance to phase 3 clinical trials without publishing a single phase 2 trial;
— Protect cancer patients from abuse through legislation and FDA oversight reform.
Please help end a medical ethics scandal that involves eight times as many patients as the Tuskegee Experiment. I look forward to your response on this important matter.
This recent silliness by “Doctor” Oz came to my attention: apparently, during a recent show he took seriously the notion that women shouldn’t carry cell phones in their bras because it could give them breast cancer. My skeptical colleague Dr. David Gorski at Science-Based Medicine summarizes Oz’s idiocy and fear-mongering here…
… The story aired on December 6 and was entitled Why You Should Keep Your Cell Phone Out of Your Bra. The entire segment, lasting ten minutes or so, is one blatant piece of fear mongering. Even by the usual low standards of a typical Dr. Oz segment, this one was bad. How bad? I’ll give you a taste. Let me start just by asking what you might expect in a segment claiming a link between an environmental exposure of some sort and a specific cancer? You’d expect some actual scientific evidence, wouldn’t you? Some epidemiology, perhaps, showing that women who hold their cell phones in their bras have a higher risk of breast cancer, perhaps with some relative risks that were at least statistically significant. You might expect some scientific evidence suggesting why the proposed mechanism is plausible. You might even expect that there would be convincing (or at least suggestive) evidence that women who put their cell phones in their bras, when they develop breast cancer, develop it more frequently on the side where they stick their cell phone. These would be reasonable things to expect that, even though they wouldn’t be convincing proof, would at least raise concerns.
There was none of that at all. Zero. Nada. Zip. In fact, I was shocked at how evidence-free this whole segment was. Usually Oz at least tries to slather a patina of scientific evidence on his pseudoscience. OK, maybe not usually, but he does at least sometimes try when he’s not doing a story on alternative medicine, “complementary and alternative medicine,” or “integrative medicine,” anyway. Not here. It’s as if Dr. Oz’s producers weren’t even trying for this one. …
If you want a good analysis that thrashes the hell out of Oz’s claims from a medical perspective, definitely read through all of Dr. Gorski’s blog post. Seeing as how I’m not a medical doctor, I won’t rehash his analysis here; but I am a physics professor, so what I can do is go through the basic physics of why it is implausible that cell phones are even physically capable of causing cancer. In fact, I’ve written numerous posts on this topic already…
This first post is probably the most thorough on the fundamental physics of how electromagnetic radiation/waves (also known as light) are generated and propagate; also included is a basic primer on the different kinds of EM waves, the EM spectrum, what role frequency and energy of light play in these issues, and the all important difference between ionizing and non-ionizing radiation. Here’s the upshot: cell phones emit non-ionizing (i.e. non-cancer causing) radiation.
This article about a hysterical politician in Maine points out the implications of allowing basic scientific literacy to be trumped by the kind of psuedoscience and fear-mongering propagated by “Doctor” Oz and his ilk.
Just a more up-to-date article outlining some more research from the Institute of Cancer Epidemiology in Denmark after it looked at more than 350,000 people with mobile phones over an 18-year period. Conclusion: even while looking for supposed long-term negative effects, none were found.
Sometimes pseudoscience is stupid, sometimes it is annoying, sometimes it hurts our educational institutions… and sometimes it is outright frakking deadly. Case in point, medical frauds who perpetuate nonsense to vulnerable, desperate people; such as when quacks push supposed “cures for cancer” which are anything but or have yet to be proven, such as in the case of Stanislaw Burzynski and his “cancer clinic”. In such situations, it is literally a matter of life and death because when cancer patients delay reliable medical treatments in favor of pseudoscientific B.S. the delay can cost them their lives. Skeptic James Randi helps to break it down in more detail here:
But rather than curse the darkness, let us instead light a candle… :)
I am happy to announce that the Skeptical Teacher will be joining a coalition of skeptical activists called the Skeptics for the Protection of Cancer Patients (SPCP). The Skeptics for the Protection of Cancer Patients is a grassroots group devoted to the promotion of promising, ethical, and transparent cancer research. For more about this project and the group sponsoring it, visit thehoustoncancerquack.com or visit their Facebook page. Also, please consider donating either some of your time by promoting the cause (if you have a blog or media contacts) and/or your money to the legitimate scientific research of cancer.
The U.S. FDA has sent a letter to the Burzynski Research Institute to cease claiming that their brain tumor treatment, antineoplastons, are safe and/or effective for the purposed for which they are being investigated. In other words, Burzynski’s claims on websites and promotional materials that this treatment WORKS is a violation because supposed to be testing that!
* Supporters often use patient anecdotes to sell his unproven treatments at the Burzynski Patient Group. We have started curating a collection of patient stories at The OTHER Burzynski Patient Group, the ones Burzynski would rather you not hear. Also, these stories can be exported to your own website IN THEIR ENTIRETY via the storify site they were created on. Free content, people. Just sayin’.
*Learn the whole story at Josephine Jones’s Blog. She has kept a comprehensive list of content about Burzynski, his clinic, and his chemotherapy on the web. An invaluable resource!
*You might be interested that the EMPLOYER of one of our members (of SPCP) was recently contacted by one of Burzynski’s misguided supporters.
Wow. I’m pretty stunned by this development. Many of you know that in the past I have been highly critical of the Huffington Post (a.k.a. the HuffPo) for their tacit acceptance and promotion of various kinds of medically-related nonsense, especially the fact they provide a big platform for anti-vaccination kooks.
However, in an interesting twist, one of their prominent writers – science correspondent Cara Santa Maria – has written a very solid and in-your-face pro-vaccine article. Not only that, but she also gives a big shout out to the WTFF’s Hug Me, I’m Vaccinated campaign!:D
Yesterday I got a flu vaccine at work. The coughs and sneezes are beginning to sound like bad muzak around the office, so I figured it was time to give flu season the finger. I’ve actually never had a flu vaccine before. It just never occurred to me to do so. But now that I work in a corporate office environment, the handwashing signs over the bathroom sink and little pumps of antibacterial hand sanitizer glistening on individual desks are beginning to make sense to me. I don’t want these people making me sick. I don’t want to make them sick either. I like my coworkers a lot, but I wish we lived in a country that understood the value of a sturdy facemask. I live in Hollywood, a city so image-obsessed that the only time you see somebody wearing one of those is if they’ve just gotten their nose done.
But I digress. I noticed when I proudly bore the sticker proclaiming to the office masses today that I got my vaccination, a lot of people responded that they “don’t do that” or they “don’t believe in it.” That struck me as funny. It made me wonder why, if a free flu vaccination is offered to you only steps from your desk, you would opt not to partake. …
… The truth is, even though a new meta-analysis published in The Lancet only two days ago showed an overall efficacy for influenza vaccination hovering around 59% (in adults age 18-65, spread over the last 44 years), I’ll take 59% over 0% any day. And not getting a vaccine is 0% effective against the spread of influenza. By the way, if you are one of those people who opt out of prophylaxis, please do your part by washing your damn hands. And sneeze into your sleeve, not all over your disease-laden paws. Of course, I’m now a lot less worried about your germs making me sick. So, hug me! I’m vaccinated.
[**Note: This is a guest post I made over at the Women Thinking Free Foundation’s blog, WTF Is Going On?!, and I thought I would share it with you]
by Matt Lowry, WTFF Secretary
As another part of the WTFF’s effort to simultaneously inform the public about the benefits of vaccines while also countering anti-vaccinationist propaganda, we make an effort to keep tabs on what the anti-vaccination movement is doing. This includes having some of our Skeptical Ninjas attend anti-vaccinationist conferences, such as last week’s Autism One Conference in Lombard, Illinois.
You know how we often hear pseudoscientists and other folks make the claim that skeptics are not interested in allowing dissenting views or that “they” (academia, the establishment, Big Pharma, whatever) are “expelling” those brave scientists and activists who dare to challenge the orthodoxy of scientists, etc? Yes, we’ve all heard this tired old argument many, many times and rolled our eyes at the overly melodramatic and irrational nature of it (which is simply a blatant attempt to avoid the facts of the argument in favor of making an emotional appeal). Well, the interesting thing is that some pseudoscientists, such as the anti-vaccintationists, appear to want to have it both ways: they wish to make this argument while simultaneously “expelling” their critics.
Case in point: two Skeptical Ninjas – the WTFF’s very own VP Jamie Bernstein and journalist Ken Reibel – were “expelled” from the Autism One Conference because… they paid for their registration and showed up. Yup, that’s it – these anti-vaccination loons kicked them out of the conference, even though they had paid to be there and were not causing any disruptions whatsoever. In fact, they not only kicked them out, but the organizers actually had seven (seven!) security personnel escort Jamie and Ken off the premises – the hypocrisy is so thick you can cut it with a knife!
To read more about the incident in question, here are a variety of perspectives from various skeptical blogs on the matter:
Now, I’ve never met Ken Reibel, but I personally know Jamie Bernstein and I have to say that she is about the most least intimidating person I know. In fact, here is a photo of her standing next to James Randi (who is about 5 feet tall)…
The ultra-menacing Jamie Bernstein next to James Randi – if you add their heights together, they might reach up to the usual person’s knee
So the obvious question is: WTF Autism One?!! Why are you throwing Jamie and Ken out simply because they attended the conference? Folks, this sort of mindless Orwellian crap doesn’t occur at skeptics’ conferences, I know that for a fact. Last year at TAM8 I met both a renowned self-declared psychic and one of the world’s leading Moon hoax conspiracy theorists. Both were perfectly welcome at TAM8 and, while there were understandably a lot of skeptics rolling their eyes and laughing at these folks, nobody was entertaining the idea of having them thrown out. We don’t play that game.
And there’s the rub: when it comes to questions of real free inquiry and open discussion, the skeptics such as those represented by the JREF and WTFF practice what they preach. While we may not agree with them, we welcome our critics and allow them to participate within our discussions. On the flip side, pseudoscientific scare-mongers like the anti-vaccinationists at Autism One openly display their hyprocrisy by saying one thing and doing another, and in so doing they show that they’re not driven by an objective search for truth but rather an ideological zeal which is dangerously disconnected from reality.
And that is why they must be opposed at every turn: because in the distorted reality-challenged worldview of the anti-vaccinationists, a lot of innocent people will die of perfectly treatable and curable diseases if they get their way.
Many progressives get their news, at least in part, from The Huffington Post. I think this is unfortunate, and I side with a growing number of bloggers who will not promote them with links or retweets. As I have explained previously, they promote a dangerous sort of quackery, including creationism, homeopathy, antivaccination propaganda, and pseudoscience. It seems that Ms. Huffington has a soft spot for this sort of drivel, and HuffPo has become notorious for it.
If you are still not convinced, you might consider examining the growing body of evidence:
In keeping with this trend, I encourage you all to NOT promote the HuffPo with links and retweets. The more people who hold them to account for the dangerous pseudoscience they are spreading, the better.
The news of these latest developments was broken by my skeptical colleague & one of the most awesome women I know, the scourge of anti-vax morons everywhere, Skepchick Elyse Anders…
Last night, after I had a glass of wine and a delicious butter pecan cupcake, I got a disturbing text from fellow Skepchick Maria.
She was at Studio Movie Grill in Holcomb, Ga, and was about to enjoy some Christmas Eve movie wonderfulness when… BAM… in her face, 70 ft x 30 ft of nauseating news:
The Safe Minds PSAs, the ones we had pulled from AMC last month, are still playing in other theaters. (This may not be the exact PSA running, but the message is the same.) …
Boy, this sucks! But rather than curse the darkness, let’s light some candles, folks… to hell with that, let’s light a motherf***ing bonfire! We’ve been here before, and we know what works – the threat of a widespread boycott will work; the problem is that we have to know exactly what movie theaters to target for the boycott. And the anti-vaxxers are making it tougher this time because they haven’t advertised the theaters which are playing their ad. So what we have to do is find out exactly what theaters are and are not playing the ad shown above.
If you’d like to help out, I suggest that you follow Elyse’s advice:
… Before you go [see a movie], I ask that you call your theater and find out if they are playing the SafeMinds ads. If they are, find an alternate theater. AMC Theaters have agreed not to run these ads in any of their theaters.
If you do see these ads, please leave a comment here [on the Skepchick comment thread], or if you’d rather not leave a comment, contact me using the Link? Question? Comment? link on the left side bar or email me at elyse(at)womenthinkingfree.org.
Once we have a list, we can work on writing letters, making phone calls and organizing our boycott. Jamie Bernstein of the WTFF is working on compiling a list as best she can… which is difficult without calling every single theater in the country today. …
Please consider getting involved, somehow. We know that we can win these fights, but it takes commitment & persistence. We cannot do it without you.
I want to pass along a story to you all. This story is about my good friend & skeptical colleague-in-arms, Elyse Anders, who is quite possibly the most awesome skeptic I know (and I know a lot of them, folks). I say this because Elyse not only talks the skeptical talk, she walks the skeptical walk, even if it means walking right into the jaws of some folks who are not very pleasant people to deal with (and that takes serious guts). You see, Elyse was one of the driving forces behind getting the Age of Autism’s anti-vaccination “PSAs” pulled from circulation at AMC Theaters before the Thanksgiving weekend.
Well, now the folks at Age of Autism are pissed and they’ve started their counter-attack, which is no surprise. Sadly, also no surprise, they are not attempting to counter our skeptical display of facts with facts, research, and so on; rather, they have started to attack Elyse personally – very personally – and I think it would be good for us to send her some love. Below I share her account of the events of recent days…
… My morning started with a coffee while checking FB to see who’s got good snark and who’s got stupid cartoon profile pictures. Instead of snark and snorks, I got an email from Kim Wombles informing me that Age of Autism has started their attack against me.
I wasn’t surprised. After the AMC awesomeness just before Thanksgiving and the Grant Park rally last May I knew I was on their radar. And Orac’s been warning me for months, and called their shot Thanksgiving Day. I was waiting for them. I was prepared… I thought.
Unfortunately, I’m naive. I expected them to come at me with information. I expected them to be angry. I expected them to call me names. I expected them to take my words out of context. I expected them to paint me as a bad mother. I expected them to use my son’s developmental delays against me. I expected them to show up here and on their own blogs.
But they play dirty.
They’ve taken my FB profile pic and posted it on their FB page with the caption:
This is the woman who fought to pull the SafeMinds PSA’s from the theatres. It’s her FB profile page photo. She is anti-choice and wants to tell you that mercury is safe and that Thimeosal is good – according to her blog. She trolls AofA regularly. As do all the pro-vaccine-injury bloggers.
It’s sly. A thinly veiled call to arms against me. They’ve called me ugly. They’ve called me negligent. They’ve threatened to call child protective services on me. They’ve vaguely threatened violence. They’ve threatened my face. They’ve threatened to rape me with broken thermometers. They’ve posted my full name and my face… and worse…the pic is not just me; it’s me and Delaney, my infant daughter. They dragged my daughter into this. They’re attacking my baby. She’s 6 months old. And she’s being threatened. …
Folks, this sort of thing is just downright despicable. It is also revealing to see the tactics being employed by these anti-vax loons when their primary response to a grassroots skeptical campaign to stop their pseudoscientific propaganda is to personally attack, smear, and even threaten the organizers of that campaign (not mention, to drag their kids into it all). Pardon me while I puke…
A few days ago when I mentioned that “It’s time to kick some ass…” on the issue of the anti-vaccine scumbags at Age of Autisum and SafeMinds trying to run a pseudoscientific & fearmongering anti-vaccine ad in theaters nationwide, I meant it. And apparently you did as well, because collectively we have kicked some major woo ass, folks!
… SafeMinds was notified late yesterday afternoon that AMC Theaters has decided to block the SafeMinds Public Service Announcement (PSA) on influenza vaccines with mercury. The PSA alerts parents and pregnant women of the presence of mercury in most influenza vaccines and the ample availability of mercury-free alternatives. The CDC has declined to give a preference for the mercury-free versions, so it is important that the public is aware of its options. AMC’s advertising representative had reviewed and approved the PSA to run in AMC cinemas over the Thanksgiving weekend. A small group of vocal vaccine proponents dismissive of mercury concerns learned of the PSA and bombarded the AMC website, leading to the company’s decision to prevent its release. SafeMinds thanks its supporters who viewed the PSA and contributed to its efforts to educate the public to avoid unnecessary mercury exposure. Mercury in all forms is dangerous, especially to the developing fetus and infants, as referenced on the PSA website www.safemindsflu.org. SafeMinds will continue its mission to educate the public on this important healthcare topic. …
Now, in their fit of whining, the Age of Autism people are encouraging their followers to boycott AMC theaters. In response, I say we encourage everyone we know to attend an AMC theater this weekend; I also suggest that you consider writing a letter to the company stating how happy you are that they made the right decision in pulling this dangerous ad from circulation in their theaters. I think perhaps a quick way to do this is to leave feedback at this website, the same website where earlier complaints about the anti-vax ad were left earlier this week.
Congratulations folks, we did it – this is a testament to grassroots skepticism in action that makes a real difference for everyone :)
Please note: I have no idea if any other theater chains (such as Regal or Sony) potentially involved in airing this ad have followed AMC’s lead. If anyone has any information on this, please share it with me.
**Update (11/23/10): I may have spoken too soon with my earlier update, folks. It seems that over the last day or so we’ve received some conflicting reports about exactly what is & isn’t going on at AMC with these ads. Elyse Anders provides more details over at Skepchick on this – until we have more info, stay tuned & continue contacting the theaters in question.
**Update (11/21/10): It appears the executives at AMC (which owns some of the theaters in question) have listened to the public outcry – they say they have pulled the ad and do not plan to show it. However, some of the other theaters may not be owned by AMC, so please contact them.
But don’t tell that to the anti-vax crowd, because they don’t give a whit about the science. They believe in their heart of hearts that they know the “truth about vaccines”, and they don’t care one way or the other what the actual evidence is… and they want to proselytize this lunacy to you:
Folks, the purpose of this ad is simple: it is to sow fear & distrust of vaccines in the hopes that you & your kids don’t get them at all – that’s it. These anti-vax groups are, for whatever reason, ideologically opposed to the very idea of vaccinations, and they’ll use every slimy tactic in the book to push it on you. If you can stomach it, here is their ad…
And here is the list of theaters that are currently being targeted by Age of Autism for this dangerous propaganda (with the potential to reach over 500,000 people):
*Empire 25 in New York City
*Long Beach 26 in Long Beach, California
*River East 21 in Chicago, IL
*Boston Common 19 in Boston, MA
*Phipps Plaza 14 in Atlanta, GA
*Tyson’s Corner 16 in McLean, VA
*Northpark Center 15 in Dallas, TX
*Rosedale 14 in Saint Paul, MN
*Pavillions 15 in Denver, CO
We cannot let this stand… I suggest that if you live in any of these areas (or know people who do) that you contact the theater in question to find out whether or not they plan to run this PSA, and if they do plan to do so then make it well known to them that you will boycott that business in perpetuity (and you will encourage everyone you know to do the same) – when it comes to stuff like this, money talks & bullshit walks. I would also notify your local health department and medical doctors’ organization about this, on the chance that they might wish to make some kind of public statement against this idiocy.
And spread the word – the skeptical & pro-science community needs to send a strong, clear message to those who would spread such life-endangering pseudoscience that we will not stand for it. We didn’t ask for this fight, be we will fight it & we will finish it.
